While FA is included in the training of every GP in Australia, it’s estimated that there might be only about 400 FAers in the country so it’s likely your GP will never have actually managed a live FAer before you.

There’s as much responsibility on us FAers to educate our doctors as on them to treat us.

Make sure you’re signed up for an FA Clinic in either Brisbane or Melbourne (more info here) and after you visit they’ll sent a note to your GP about your ongoing care.

In addition, FARA sponsored development of a comprehensive resource “Clinical Management Guidelines for Friedreich Ataxia”. (The project was led by Louise Corben at MCRI in Melbourne). When I say comprehensive, I mean just that. This isn’t something you can print out and give to your care team to read. Rather, give them this link: https://frdaguidelines.org/ and they’ll find a wealth of information on every speciality.